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Information
National Prevention Program
The goal of the National Prevention Program is to reduce the complications of bleeding disorders. The NPP’s theme is “Do the 5”:
- Get an annual comprehensive check-up at a hemophilia treatment center
- Get vaccinated — Hepatitis A and B are preventable
- Treat bleeds early and adequately
- Exercise to protect your joints
- Get tested regularly for blood borne infections
First Step is a program that welcomes families of infants and young children into the bleeding disorder clinics.
First Step organizes small get-togethers in which new families can receive education and can meet other families with similar challenges. New families can also be linked trhough a new family mentoring program.
Project Red Flag is an awareness campaign related to bleeding disorders in women.
College Scholarships
The hemophilia community is fortunate to have abundant scholarships available to current and future college students with bleeding disorders to help them get the education they need to live the lives they dream.
Scholarships for Children with Disabled Parents
National Hemophilia Foundation
Hemophilia Federation of America
Access Program
888.770.7010
Bleeding Disorders Legal Hotline
800.520.6154
World Federation of Hemophilia
Yahoo! Support Groups
Research and Medical Information
National Heart, Lung and Blood Institute
American Society of Gene Therapy
National Institute of Allergy and Infectious Diseases
Food and Drug Administration
Food and Drug Administration Recall Information
Causes-of-Hemophilia.com
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Florida Treatment Clinics
All Children’s Outpatient Care Clinic
Pediatric Cancer and
Blood Disorders Center
601 5th Street South, Third Floor
St. Petersburg, FL 33701
Phone: (727) 767-4931
Center for Children’s Cancer and Blood Disorders at Arnold Palmer Hospital for Children
92 West Miller St., MP 318
Orlando, FL 32806
Phone: (321) 841-8588
Joe DiMaggio Children’s Hospital
Pediatric Specialty Center
1150 N 35th Avenue, Suite 520
Hollywood, FL 33021
Phone: (954) 986-2234
Lee Memorial Hospital
Department of Pediatric
Hematology & Oncology
9981 So. Healthpark Dr., Suite 156
Ft. Myers, FL 33908
Phone: (239) 332-1111
Nemours Children’s Clinic, Jacksonville
Department of Pediatric Hematology/Oncology
807 Children’s Way
Jacksonville, FL 32207
Phone: (904) 697-3789, (904) 697-3600
Nemours Children’s Clinic, Orlando
Department of Pediatric Hematology/Oncology
83 West Colombia Street
Orlando, FL 32806
Phone: (904) 697-3789, (904) 697-3600
Sacred Heart Pediatric Hemophilia Program, Pensacola
Phone: (850) 416-7712
St. Joseph’s Children’s Hospital
Pediatric Hematology Oncology
Out-patient Clinic
3001 W. Dr. Martin
Luther King Jr. Blvd.
Tampa, FL 33607
Phone: (813)554-8937
University of Florida
Department of Medicine
Adult Hemophilia
P.O. Box 100277
Gainesville, FL 32610
Phone: (352) 392-3000
University of Florida
Pediatric Hematology/Oncology
P.O. Box 100296
Gainesville, FL 32610
Phone: (352) 273-9120
The University of Miami Hemophilia Treatment Center
Pediatric Clinic Location
ACCW-5A
1611 NW 12th Avenue
Miami, FL 33136
Phone: (305) 585-5635
Adult Clinic Location
ACCW-3A
1611 NW 12th Avenue
Miami, FL 33136
Phone: (305) 243-6925
USF Adult Hemophilia Center
Department of Internal Medicine
12901 Bruce B. Downs Blvd., MDC 19
Tampa, FL 33612
Phone: (813) 972-7582
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