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Information
National Prevention Program
The goal of the National Prevention Program is to reduce the complications of bleeding disorders. The NPP’s theme is “Do the 5”:
- Get an annual comprehensive check-up at a hemophilia treatment center
- Get vaccinated — Hepatitis A and B are preventable
- Treat bleeds early and adequately
- Exercise to protect your joints
- Get tested regularly for blood borne infections
First Step is a program that welcomes families of infants and young children into the bleeding disorder clinics.
First Step organizes small get-togethers in which new families can receive education and can meet other families with similar challenges. New families can also be linked trhough a new family mentoring program.
Project Red Flag is an awareness campaign related to bleeding disorders in women.
College Scholarships
The hemophilia community is fortunate to have abundant scholarships available to current and future college students with bleeding disorders to help them get the education they need to live the lives they dream.
Scholarships for Children with Disabled Parents
National Hemophilia Foundation
Hemophilia Federation of America
Access Program
888.770.7010
Bleeding Disorders Legal Hotline
800.520.6154
World Federation of Hemophilia
Yahoo! Support Groups
Research and Medical Information
National Heart, Lung and Blood Institute
American Society of Gene Therapy
National Institute of Allergy and Infectious Diseases
Food and Drug Administration
Food and Drug Administration Recall Information
Causes-of-Hemophilia.com
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Florida Treatment Clinics
All Children’s Hospital
Department of Pediatric Hemotology/Oncology
St. Petersburg Clinic
880 6th Street South, Suite 140
St. Petersburg, FL 33701
Phone: (727) 767-4176
Tampa Clinic
12220 Bruce B. Downs Blvd.
Tampa, FL 33612
Phone: (813) 631-5001
Joe DiMaggio Children’s Hospital
Pediatric Specialty Center
Division of Hematology/Oncology
1150 N 35th Avenue, Suite 520
Hollywood, FL 33021
(954) 986-6389
Lee Memorial Hospital
2776 Cleveland Ave.
Ft. Myers, FL 33901
Phone: (239) 332-1111
Nemours Children’s Clinic
Department of Pediatric Hematology/Oncology
807 Children’s Way
Jacksonville, FL 32207
Phone: (904) 390-3789
Nemours Children’s Clinic
Department of Pediatric Hematology/Oncology
83 West Colombia Street
Orlando, FL 32806
Phone: (407) 650-7230
Sacred Heart Pediatric Hemophilia Program, Pensacola
Phone: (850) 416-7712
Tampa Children’s Hospital
at St. Joseph’s Department of Pediatric Hematology/Oncology
3001 West Martin Luther King Blvd.
Tampa, FL 32607
Phone: (813) 870-4824
University of Florida
Department of Pediatric Hematology/Oncology
P.O. Box 10029 Health Science Center
Gainesville, FL 32610
Phone: (352) 265-8250
University of Florida
Department of Medicine Adult Hemophilia
P.O. Box 100277
Gainesville, FL 32610
Phone: (352) 392-3000
University of Miami
Department of Pediatrics
P.O. Box 016960 (R-131)
Miami, FL 33136
Phone: (305) 585-5635
University of Miami
Adult Hemophilia Program
Thomas Harrington, MD
1611 NW 12th Avenue
ACC East
Miami, FL 33136
Phone: (305) 243-6925
University of South Florida
MDC 19
12901 Bruce B. Downs Boulevard
Tampa, FL 33612
Phone: (813) 972-7582
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